Helpline: 020 8964 1166
Monday - Friday 9am to 5pm
Monday - Friday 9am to 5pm
Come to us if you need support and information about scoliosis or you are a scoliosis researcher who needs funding
Vicky’s story is all too familiar– one of a chance diagnosis that led to a life altering series of events. The power to create positive awareness of scoliosis is what drives us. Speak up wherever and whenever you can. Never underestimate the difference you can make.
Contact us to find your nearest specialist then take this information to your GP and ask for a referral.
If you are in pain, whether mild, moderate or severe, help is available to manage it.
Information on what is happening, where and when will be on this page. Watch this space!
Without the support we receive from our fantastic fundraisers we would not be able to continue our work.
If you are a researcher with an idea for a project, read about the grants we offer.
Contact us to find your nearest specialist then take this information to your GP and ask for a referral.
If you are in pain, whether mild, moderate or severe, help is available to manage it.
Information on what is happening, where and when will be on this page. Watch this space!
Without the support we receive from our fantastic fundraisers we would not be able to continue our work.
If you are a researcher with an idea for a project, read about the grants we offer.
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My condition was diagnosed in 1966 when I was 10 years old – curvature of the spine with rotation. At that time, the only available treatments were bone grafts or a torso plaster cast, with no guarantees of success.
I finally received my official diagnosis aged 50 and have since been told I have adolescent idiopathic scoliosis. Throughout my adult life I suffered from debilitating back pain without knowing why.
Overall, I think my experience has made me brave and resilient. It was hard at the time, but I don’t think about it very much at all anymore. I am lucky to feel normal and have such a good support system around me.
I was diagnosed with scoliosis at the age of 11 but it was left untreated for years as my referral to the hospital got lost, so I had to live with a deteriorating spine.
Ten years ago, I faced a pivotal moment that has shaped my life – 11 hour major spinal surgery to correct scoliosis. I couldn’t think of a better way to celebrate this huge milestone by officially being able to say, I will be running the London Marathon 2024 for Scoliosis Support and Research.
Keeping you informed about what we’re doing and how we can help you
Links to useful UK - based sites that provide a variety of information on managing pain, living with a disability and syndromes and conditions.
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Our information booklet, Scoliosis: Know the Facts, provides an introduction to the condition and its treatments.
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Information and advice about scoliosis, packed with member stories, features from specialists and health care professionals
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