We promote and fund innovative research to improve treatment options for patients and we offer guidance and support to individuals and families affected by scoliosis. We also fundraise to ensure our work can continue long into the future. We educate so the medical facts are understood, and we connect people living with scoliosis.

We are governed by a board of Trustees. Our Trustees are a diverse mix of scoliosis specialists, people with lived experience of the condition, and people with a specific interest in scoliosis as a medical condition.

Vision

As the UK’s leading scoliosis charity, our vision is to create UK-wide awareness, to identify the cause(s) and to advance medical research and treatments for scoliosis and other related spinal conditions

Our Mission and Values

Mission

Our mission is to provide support and information; raise awareness; and fund research to improve the quality of life and empower everyone affected by scoliosis and other related spinal conditions.

Values

We commit to:-

– building a supportive, compassionate community for everyone affected by scoliosis

– collaborating with appropriate partners to achieve our mission

– educating health care professionals, the general public and our community with leading expert information

– listening to and responding to the needs of our community and partners

– investing in top quality, innovative research opportunities

Our beginnings…

The British Scoliosis Research Foundation was formed in 1973 by Dr Philip Zorab. He specialised in respiratory problems caused by scoliosis and presented key research to important physicians and surgeons who had children and adults with scoliosis in their care. His work stimulated new research into scoliosis worldwide. Dr Zorab died in 1983 but we continue his work with the same passion and ensure the necessary financial grants facilitate further high quality research into scoliosis.

Scoliosis Association UK, was started in 1981 by founding members Ailie Harrison and Stephanie Clark with around 200 members who came together to support each other at a self-help group. Each member of this group had received treatment from renowned chest physician Dr Phillip Zorab at the Brompton Hospital in London. At the time it was the only UK-wide organisation providing support for people affected by scoliosis.