Mission & History

Scoliosis Support and Research strives to help everyone affected by scoliosis to live life to the fullest.

Get to know us

We promote and fund innovative research to improve treatment options for patients and we offer guidance and support to individuals and families affected by scoliosis. We also fundraise to ensure our work can continue long into the future. We educate so the medical facts are understood, and we connect people living with scoliosis.

In 2023 Scoliosis Association UK and The British Scoliosis Research Foundation merged and we became Scoliosis Support and Research.

We are governed by a board of Trustees. Our Trustees are a diverse mix of scoliosis specialists, people with lived experience of the condition, and people with a specific interest in scoliosis as a medical condition.

Our beginnings…

The British Scoliosis Research Foundation was formed in 1973 by Dr Philip Zorab. He specialised in respiratory problems caused by scoliosis and presented key research to important physicians and surgeons who had children and adults with scoliosis in their care. His work stimulated new research into scoliosis worldwide. Dr Zorab died in 1983 but we continue his work with the same passion and ensure the necessary financial grants facilitate further high quality research into scoliosis.

Scoliosis Association UK, was started in 1981 by founding members Ailie Harrison and Stephanie Clark with around 200 members who came together to support each other at a self-help group. Each member of this group had received treatment from renowned chest physician Dr Phillip Zorab at the Brompton Hospital in London. At the time it was the only UK-wide organisation providing support for people affected by scoliosis.

How do we help those affected by scoliosis?

We provide a dedicated Helpline to call or email for advice, support or just someone to talk to
We provide up-to-date information on scoliosis and related health matters
We promote and fund high-quality, innovative, UK-based research into scoliosis and other spinal conditions
We provide online support groups facilitated by a qualified Counsellor covering various age groups.
We organise campaigns and activities to help increase awareness of scoliosis amongst the general public and health professionals
We hold patient meetings across the country which include talks from specialists and an opportunity to meet others.
Support

Whether you want general guidance or advice or just to talk things through, we are here to help.

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Research

We fund three types of research grants for work in scoliosis and other spinal conditions.

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