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📢 London Patient Event – 29 June 2025 📢![]()
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Join us in London for a full-day scoliosis event, featuring expert talks on spinal fusion, pain management, and the ageing spine. 🌟![]()
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🗓 Date: Sunday, 29 June 2025![]()
📍 Location: Brady Arts & Community Centre, E1 5HU![]()
⏰ Time: 10:30 AM – 4:30 PM![]()
🎟 Tickets: £9.99 – Scan the QR code on the poster to book or you can purchase through the link:![]()
app.etapestry.com/onlineforms/ScoliosisSupportAndResearch/Londonevent.html![]()
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✨ Event Highlights:![]()
✅ Celebrity Guest Speaker – Personal experience with scoliosis & surgery![]()
✅ Spinal Fusion Surgery – Dr Hilali Nordeen, Orthopaedic Consultant![]()
✅ Nutrition for Spinal Fusion Recovery – Laura Allen, Dietician![]()
✅ The Ageing Spine & Surgery – Mr Yoon, Orthopaedic Consultant![]()
✅ Managing Chronic Pain – Dr Halfpenny, Pain Management Consultant![]()
✅ Exercise for Scoliosis – Caroline Freedman & Emily Hale, Personal Trainer & Physio![]()
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Don’t miss this chance to hear from experts, ask questions, and meet others in the scoliosis community!![]()
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📢 Limited tickets available – book now!![]()
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#LondonEvent #ScoliosisSupport #SpineHealth #PainManagement #SpinalFusion
Thank you, Julia!![]()
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We were honoured to feature @juliacarlile_xo in the Spring edition of Backbone Magazine. Julia’s journey — from surgery to the stage — is one of resilience, passion, and determination. Her story continues to inspire the scoliosis community and beyond. ![]()
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A huge thank you to Julia for taking the time to share her experience so honestly with us.![]()
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📖 Read her story now via the link in our bio.![]()
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#ScoliosisAwareness #BackboneMagazine #JuliaCarlile #Scoliosis
Thank you, Natalie!![]()
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We’re so grateful to @nataliegoodofficial for sharing her scoliosis journey with us in the latest edition of Backbone Magazine. Natalie’s story is open, honest and inspiring — a powerful reminder of how strength and creativity can shine through even the toughest challenges. ![]()
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If you haven’t read her Q&A yet, please take a moment to do so — we know it will resonate with so many of you.![]()
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📖 Read now via the link in our bio.![]()
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#ScoliosisAwareness #BackboneMagazine #NatalieGood #Scoliosis #Inspiration
The Spring 2025 digital edition of Backbone Magazine is out now!![]()
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Inside this issue:![]()
✨ Meet Julia Carlile (@juliacarlile_xo)![]()
🖌️ See entries from the Ailie Harrison art competition![]()
🩺 Learn about scoliosis surgery and care pathways![]()
💬 Read a Q&A with musician & singer Natalie Good (@nataliegoodofficial)![]()
🧘♀️ Discover the magic of Pilates![]()
...and take a look back at our 2024 patient events![]()
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We hope there's something in this edition for all ages, all demographics, and for everyone living with this incredibly varied condition.![]()
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If you'd like to share your story in a future edition, email us at communications@ssr.org.uk.![]()
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If you have any issues accessing the online magazine, please reach out for help.![]()
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For those who receive Backbone by post, your copy will arrive in the next week or so.![]()
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Link in our bio.
Community Hero Alert![]()
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A huge thank you to Jason Spicer, who has raised an incredible £1,500 for Scoliosis Support & Research!![]()
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Jason ran 5K every single day throughout April, covering 193km over 30 different routes (and 8000+ feet of elevation!) — all to honour his daughter Imogen, who was diagnosed with scoliosis in 2022 and bravely underwent surgery in March 2024.![]()
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This challenge marked her one-year "spiniaversary" 🎉 and was Jason’s way of giving back after the amazing care Imogen received. As a family of runners, it was a meaningful and emotional journey — and we are truly inspired by their strength and determination. ![]()
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Thank you Jason (and Imogen!) — your story, support and spirit mean the world to us. ![]()
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#ScoliosisAwareness #Fundraising #ScoliosisSupport #Support
New Blog Post | Maya’s Journey: Living with Congenital Scoliosis![]()
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At a routine 20-week scan, Priya was told her baby might have a curved spine. What followed was months of uncertainty, a shocking diagnosis, and major spinal surgery before Maya’s 1st birthday.![]()
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Written by Maya’s mum, this honest, emotional story highlights a journey of strength, resilience, and the power of expert care.![]()
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📖 Read now: ssr.org.uk/2025/05/12/mayas-journey/![]()
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#CongenitalScoliosis #PatientStory #SpineHealth #Scoliosis
