Raising awareness
Although scoliosis is not a rare condition, with approximately 4 out of 1000 people needing support from a scoliosis specialist, surprisingly little is known about it. This can mean that people with scoliosis can struggle to find the information they need quickly, resulting in them feeling alone and unsure about how to access the care they need.
One of our main aims at Scoliosis Support and Research is to raise awareness of scoliosis among both health professionals and the general public. We are always looking for people who can help us raise awareness in their local community by putting up educational posters and distributing information leaflets. It really helps if people distribute information to their local schools, doctor’s surgeries, hospitals and community centres as this is where the information can reach the most people.
One of our most important times of the year is Scoliosis Awareness Month, which takes place every June. Our community plays a key role in raising awareness during this time, and we’re always looking to support those who want to get involved. Whether it’s helping to run events, distributing literature, giving a talk at a local school, or reaching out to local media – we’re here to support you in making an impact in your area.
By organising events, hosting gatherings, or getting involved in local community groups, you’re helping to raise awareness of scoliosis while also promoting opportunities to support the cause—whether through donations or fundraising activities.
You can find out more about organising your own event or taking part in an event through our fundraising pages or contact Will Thommes, our Fundraising & Communications Manager, on 0208 964 5343 or email: fundraising@ssr.org.uk
Volunteering
Our dedicated office team, here at Scoliosis Support and Research, is very small so we often look for volunteers who can offer time and skills to help with the running of the charity. Whether it be through offering support to our members or by giving a helping hand in the office, there are a number of ways that you could volunteer with us.
We love to hear from people with specific skills that could help us share and advertise the good work that we do, such as photography, film and IT skills through to journalism and those with legal knowledge. Please get in touch if you would like to help out either on a regular basis or on a ‘one-off’ basis, all help received helps us continue to help and support those affected by scoliosis.
Your story
If you have a story to tell about your experiences of scoliosis, and would be happy to share this story, we would be interested in running your story as an article in our magazine Backbone, or as a feature here on our website. So, whether you have lived with scoliosis for years, want to talk about an experience such as bracing or surgery, or if you want to share something you have found helpful, we want to hear from you!
Please contact us on 020 8964 1166 or e-mail: info@ssr.org.uk with the details of your story.
