Osteogenesis Imperfecta (OI) is a genetic bone disorder characterised by fragile bones that break easily. It is also known as brittle bone disease. A person is born with this disorder and is affected throughout his or her lifetime. The Brittle Bone Society was established in 1968 to support the needs of people born with OI and their families in the UK and Republic of Ireland.

Founded in 1984, the Marfan Association (UK) sets out to provide support for people affected by Marfan Syndrome, as well as increase awareness amongst the medical profession. You may also find that the Marfan Trust website has useful information on Marfan Syndrome.

Information, advice, and support for people affected by Neurofibromatosis.

Rett UK Rett UK offers professional advice and support for families affected by Rett syndrome. They provide a helpline and information sheets.

The British Polio Fellowship is a charity dedicated to helping, supporting and empowering approximately 120,000 people in the UK living with the late effects of Polio and Post Polio Syndrome (PPS), a neurological condition. It provides information, welfare and support to those living with the effects to enable all to live full independent and integrated lives.

The British Scoliosis Society represents surgeons, allied health professionals, and researchers interested in the nature of and treatment of scoliosis and complex spine disorders.

This directory is provided by the British Association for Counselling and Psychotherapy (BACP), a membership organisation and registered charity that sets standards for therapeutic practice and provides information for therapists, clients of therapy, and the general public.

In Wales, there are over 30,000 people affected by Scoliosis. SWS Cymru aims to support through the medium of Welsh and English patients and families with scoliosis, raising awareness and better understanding of this condition and the difficulties that arise with it, through education and sharing information.

The HMSA is the only charity offering both practical support and Information Standards Accredited health and care information to people who have a hypermobility syndrome or who are involved in the care of someone with any of the hypermobility syndromes.