Support

Whether you want general guidance or advice or just to talk things through; the SSR team are here to support you.

Scoliosis support

Find a Specialist

It is important that patients with scoliosis see a consultant who specialises in scoliosis and other spinal conditions rather than a general orthopaedic surgeon. UK-based patients should contact us at Scoliosis Support and Research to find their nearest NHS specialist and take this information to their GP to ask for a referral.

We pride ourselves on keeping an up-to-date list of all the NHS and Private scoliosis specialists across the UK as not all hospitals have scoliosis specialist centres. GPs are not always aware of which centres specialise in scoliosis and we can help your other healthcare professionals with this information.

All of the scoliosis specialists on our list are members of the British Scoliosis Society and our list is regularly updated to ensure the most accurate information is available to anyone who contacts us. This also ensures that people with scoliosis are seen by a specialist consultant in the centre nearest to them.

To find out where your nearest scoliosis specialist is, please call our Helpline on 020 8964 1166 or e-mail: info@ssr.org.uk.

Patient meetings

One of the most important benefits of our work at Scoliosis Support and Research is the community of people that we bring together. This community is full of families and individuals affected by all types of scoliosis who share their experiences and advice about how they are dealing with this condition.

Every year, we organise meetings in a variety of locations across the UK to discuss the issues for families and individuals surrounding scoliosis. These meetings provide the opportunity to hear from scoliosis specialists and treatment experts, and get answers to your questions. These events are also a great opportunity for people to meet each other and share stories and information about their experiences with scoliosis.

Our most recent patient meeting was held in London in June 2023, to celebrate International Scoliosis Awareness Day. To be the first to hear about patient meetings, join Scoliosis Support and Research as a member here.

Hill, Pedder and Minns Fund

The Hill, Pedder and Minns Fund was set up to help those living with scoliosis with financial support in the form of a grant of up to £500.

The fund was formally known as the Minns Fund. Andrew Minns was a founding member and Trustee of the former Scoliosis Association UK (SAUK) who amalgamated to become Scoliosis Support and Research. He left money to set up a fund to support those affected by scoliosis. In 2018, Mrs Patricia Hill and Mrs Daphne Pedder, who were two of our long term members and supporters, passed away and also left funds in their Wills. Part of this legacy has been added to the Minns Fund to ensure we can support even more people living with scoliosis who are in need of financial support.

Who can apply? Members of Scoliosis Support and Research (SSR) affected by scoliosis.

Small grants are available to those who require equipment, travel expenses to appointments or other scoliosis related financial support. The maximum amount granted is £500 and applicants can only apply once per year. Currently, we can fund only NHS-related requirements and cannot fund costs related to private treatment.

Completed application forms should be sent by email to info@ssr.org.uk or by post to Scoliosis Support and Research, Ground Floor, 329 Latimer Road, W10 6RA

Click here to download your application form.

Need further support? Call our helpline!

Whether you want general guidance or advice or just to talk things through; the SSR team are here to lend a listening ear.

Call us on 020 8964 1166 or email info@sauk.org.uk

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