Support

It is important that patients with scoliosis see a consultant who specialises in scoliosis and other spinal conditions rather than a general orthopaedic surgeon. UK-based patients should contact us at Scoliosis Support and Research to find their nearest NHS specialist and take this information to their GP to ask for a referral.

We understand that living with scoliosis can be difficult and connecting with people with lived experience of scoliosis can be helpful and have a positive impact on mental wellbeing. For this reason, we provide online peer support groups for people with scoliosis and for parents of children with scoliosis. We also have a Facebook group where people can connect with others and ask scoliosis related questions to the community.

Our helpline is open Monday – Friday (9am – 5pm) and we provide a listening ear, emotional support, general information and advice.

We also provide a talking therapy service, with a qualified BACP counsellor, for adults who are facing psychological distress related to scoliosis. This service has a long waiting list due to high demand, however, we are looking into ways to reduce the waiting time so that more of our community can access this service.

Patient Events

One of the most important aspects of our work at Scoliosis Support and Research is the community of people that we bring together. This community is full of families and individuals affected by all types of scoliosis who share their experiences and advice about how they are dealing with this condition.

Every year, we organise events of up to 100 people in locations across the UK to discuss the issues faced by families and individuals affected by scoliosis. These provide the opportunity to hear from scoliosis specialists and treatment experts, and get answers to your questions. They are also a great opportunity for people to meet each other and share stories and information about their experiences with scoliosis.

📢 Next Event: Norwich – 22 March 2025 📢
Join us at the Mercure Norwich Hotel for a full-day event featuring talks from leading specialists on scoliosis treatment, surgery, physiotherapy, and ageing with scoliosis.

🔹 Highlights:
✔ Expert talks from orthopaedic consultants & physiotherapists
✔ Topics include pregnancy & scoliosis, adolescent treatment, bone health & ageing spine
✔ Lunch, tea, and coffee provided (vegan option available)
✔ Tickets: £9.99 – Sign up HERE.

To be the first to hear about future patient events, join our Scoliosis Support and Research community here.

Hill, Pedder and Minns Fund

The Hill, Pedder and Minns Fund was set up to help those living with scoliosis with financial support in the form of a grant of up to £500.

The fund was formally known as the Minns Fund. Andrew Minns was a founding member and Trustee of the former Scoliosis Association UK (SAUK) who amalgamated to become Scoliosis Support and Research. He left money to set up a fund to support those affected by scoliosis. In 2018, Mrs Patricia Hill and Mrs Daphne Pedder, who were two of our long term members and supporters, passed away and also left funds in their Wills. Part of this legacy has been added to the Minns Fund to ensure we can support even more people living with scoliosis who are in need of financial support.

Who can apply? Members of Scoliosis Support and Research (SSR) affected by scoliosis.

Small grants are available to those who require equipment, travel expenses to appointments or other scoliosis related financial support. The maximum amount granted is £500 and applicants can only apply once per year. Currently, we can fund only NHS-related requirements and cannot fund costs related to private treatment.

Completed application forms should be sent by email to info@ssr.org.uk or by post to Scoliosis Support and Research, Ground Floor, 329 Latimer Road, W10 6RA

Click here to download your application form.